Hike for Grayson

Hike. See. Explore.
Hike for Grayson
Support Cure Tay-Sachs Foundation


Meet Grayson Kemp, our four year-old suffering from the terminal illness of Infantile Tay-Sachs Disease. Getting out on hikes is now nearly impossible for Grayson, but we’ve tried to do it as long as possible because hiking with his family is the one thing we’ve always known he enjoys. Grayson has never walked and must be carried to hike, the disease is taking his eyesight and we don’t know how much he can still see, and he is slipping further and further away and cannot explore all of the wonders of the world.  

We want to prevent other children from suffering from this terrible disease. Please help us raise money to find a cure, get outside and hike, see the beauty of this earth, and explore places Grayson never will have the chance to –  hike for Grayson to help raise awareness. Raising awareness leads to fundraising for research, and research will lead to a cure! 

We are so thankful for everyone who participated in our Summer 2017 #hikeforgrayson challenge – friends on the other side of the world, family leading hikes in other states, friends we’ve made through the campaign, people we’ve never met, and those local sponsors who stepped up to support!

How you can help in 2019 – Register for the 2019 Take A Hike Tay-Sachs Virtual 5k! January 15, 2019-March 31, 2019, register to hike/walk/run anywhere and anytime in the month of March! You’ll receive a t-shirt, one-of-a-kind finisher’s metal, and the knowledge that you’ve helped get us one step closer to a cure! Register here: https://raceroster.com/21436

What you can tell children about Tay-Sachs: Grayson was born with something wrong with his brain, called Tay-Sachs. You cannot catch it from him, and no one else in his family has it. Having Tay-Sachs means he cannot do things like talk or walk and he has trouble with things like swallowing and seeing things clearly. He will have it for the rest of his life. 

Thank you for your support!