Hike. See. Explore.
Hike for Grayson
Support Cure Tay-Sachs Foundation
Meet Grayson Kemp, our three year-old suffering from the terminal illness of Infantile Tay-Sachs Disease. Getting out on hikes is harder and harder for Grayson, but we do it because hiking with his family is the one thing we’ve always known he enjoys. Grayson has never walked and must be carried to hike, the disease is taking his eyesight and we don’t know how much he can still see, and he is slipping further and further away and cannot explore all of the wonders of the world.
We want to prevent other children from suffering from this terrible disease. Please make a donation, get outside and hike, see the beauty of this earth, and explore places Grayson never will have the chance to – hike for Grayson and support the Cure Tay-Sachs Foundation!
We are so thankful for everyone who participated in the Summer 2017 #hikeforgrayson challenge – friends on the other side of the world, family leading hikes in other states, friends we’ve made through the campaign, people we’ve never met, and those local sponsors who stepped up to support!
You can still hike for Grayson any time and anywhere!
The hike for Grayson challenge:
- Make a tax deductible donation to the Cure Tay-Sachs Foundation (CTSF) (curetay-sachs.org);
- Go on a hike and snap a photo;
- Post photo on social media (FB/Twitter/Instagram/etc.) with #hikeforgrayson (public post, please); and
- Tag @curetaysachsfoundation + challenge at least two friends to hike for Grayson!
What you can tell children about Tay-Sachs: Grayson was born with something wrong with his brain, called Tay-Sachs. You cannot catch it from him, and no one else in his family has it. Having Tay-Sachs means he cannot do things like talk or walk and he has trouble with things like swallowing and seeing things clearly. He will have it for the rest of his life.
We are playing around with the idea of having a #hikeforgrayson day each year to encourage everyone to get out and hike, and remember that Tay-Sachs needs a cure. Once we figure it out, updates will be here.
Thank you for your support!
Felicia, Chris, Logan, & Grayson Kemp
@teamgraysonkemp on FB & Twitter, curetay-sachs.org @CureTaySachsFoundation on FB, Instagram, & Twitter, familytrailtime.wordpress.com @familytrailtime on FB, Instagram, & Twitter